Case studies – The good news stories
Whilst we know that there is a lot of variation in access to assessment and obtaining the right chair at the right time from wheelchair services there are many examples of good practice and great experiences for us to learn from and share. Meet some of the people who rely on wheelchair services, and some of the people working to ensure that the system works for users.
Case studies – The case for change stories
Sadly not everyone has a great experience of wheelchair service provision. Here we share the personal stories of a number of wheelchair users and their families who clearly demonstrate why it is important that we work together quickly to improve wheelchair services for all.
David has Inclusion Body Myositis, a progressive and life-limiting muscle-wasting condition, for which there is no cure. The progressive nature of the condition is such that David’s muscles have become severely weak and wasted, especially the muscles in his shoulders, arms, hands and lower limbs i.e. thighs.
Ben is 25 and has a rare form of congenital muscular dystrophy. He finds it so difficult to attempt to mobilise, even in his own home, that he remains seated for most of the day – for fear of falling and breaking a bone. Due to his muscle-wasting condition, his bones have become very brittle and he has incurred fractures and breaks in the past.
One of our supporters has received the RIGHT CHAIR due to an excellent Access to Work advisor. Hear below in their own words their story.
Kevin* will be 9 years old later this month, he is a full time wheelchair user and always has been. He cannot sit unaided, stand or walk. Adam's wheelchair is his link to the outside world. Read below in his mother's words her experiences of Wheelchair Services.
Anna-Maria has been waiting since she had my stroke last year (2014) for a wheelchair. Hear below in Anna-Maria's own words her tale.....
Diane's experience of wheelchair services was so horrendous she went to the Parliamentary and Health Service Ombudsman (PHSO), who upheld hercomplaint. Read below in Diane's own words her experience of wheelchair services.
Ben W is 15 years of age. Following an illness at six months old, he has been left blind, epileptic, has four limb cerebral palsy, is wheelchair dependent, and has significant developmental cognitive delay. These medical descriptors do not paint the best picture, but two things that Ben does have are, firstly a huge personality, and secondly the ability to verbally communicate his needs and desires.
After being 'accidentally' copied in to an email, in June 2013, from one of my managers to the Local Authority's HR department questioning my fitness to carry on teaching as I was too slow getting around on crutches I gave in to the nagging of my physio and OT and allowed them to refer me to wheelchair services for an assessment.